Information for study participants

Dr. Sheilla Achieng

Rheumatology Registrar
University of Liverpool

Information for - study participants

Thank you for being a part of our research.

The KESLER Register study has undergone rigorous review and approval by a research ethics committee, the scientific and ethics review unit (SERU) and further site-specific approvals from the various institutions where the study will be taking place.

The study is led by Dr. Sheilla Achieng, a Rheumatology Registrar at the University of Liverpool, who has secured funding to develop the registry as part of a PhD Fellowship.

Professor. Omondi Oyoo

Oversight of the registry is provided by Professor. Omondi Oyoo, a distinguished consultant rheumatologist who pioneered in the field of rheumatology in Kenya and is a Professor of Rheumatology at the University of Nairobi.

Additionally, the study benefits from the expertise of international collaborators, including Professor Lance Turtle, Chair and Honorary Consultant Physician in Infectious Diseases at the Department of Clinical Infection, Microbiology and Immunology, and Professor Ian Bruce, Honorary Professor of Rheumatology at the University of Manchester. Their involvement enhances the study's capacity to explore the complex intersection of lupus and infection risks in Kenya.

As the study continues, more data will become available for analysis, making the KESLER register even more useful for lupus researchers.

Professor. Omondi Oyoo

Consultant Rheumatologist

What is my involvement in the study?

Lupus participants: We will monitor your progress and gather information about your lupus symptoms and treatment during your routine hospital visits. Every six months, we will also ask you to complete questionnaires about your symptoms and how they impact your daily life.

With your consent, we may collect urine samples and additional blood samples during your regular blood tests, so no extra hospital visits will be needed. If you develop an infection, we may need to collect additional samples and arrange further evaluations, depending on the severity of your symptoms, outside of your usual appointments.

Additionally, you will be asked to keep a diary to track any changes in your medications, hospital stays, and appointments.We plan to collect this information over a period of at least two years.

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Why get involved?

By taking part in this study, you will be helping researchers gather important information. Your participation is very valuable and will help us better understand the risk of infections in people with lupus, which could lead to improved treatments.

If you’re not already part of the study but would like to join, please reach out to us using the contact details at the bottom of this page. If you'd like more information about the study, we can provide it upon request. We will also share study materials with you for your referenceTop of Form

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